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ARE YOU A CARER OR DO YOU KNOW SOMEONE WHO IS?

Are re you a carer?

If you look after your partner, or a relative or friend who is ill or disabled, you are a carer, even if you don’t think of yourself that way.

There are many ways that you might care for someone.

For instance you might:

  • be on hand 24 hours a day to provide care
  • arrange hospital appointments for someone
  • drop round each day to keep someone company or cook their dinner
  • visit a relative who lives far away once a month to see how they’re doing.
  • Whether you’ve cared for the person for a long time, are temporarily helping them (for example, while they recuperate from an operation), or have just become a carer, take time to review your options and find out what support is available to you.

To establish your rights as a carer refer to  Age UK on the following link

http://www.ageuk.org.uk/home-and-care/advice-for-carers/your-rights-as-a-carer/

The Care Act comes into force in May 2015. It changes the way the social care system will work in the future.

You’ve probably heard about the biggest change: a care cap that means no-one will spend more than £72,000 of their own money on their care needs.

If you need care, or look after someone who does, you’ll need to know how care is changing.

Befriending

Ways it may affect you from April 2015:

  • You will have a right to a free needs assessment from your council, even if it thinks your finances are too high or your needs are too low to qualify for help.
  • All councils will use a new national eligibility criteria to decide whether someone can get help from them.
  • If you get social care support, you will now have a right to request a personal budget if you’re not offered one. This is a summary of how much the council thinks your care should cost. This might be useful if you want to pay for your own care. This will become more important when you have a care account from April 2016 (see below).
  • If your needs assessment shows you don’t qualify for help from the council, they must advise you how the care system works and how to pay for your own care. So if you just need a hand with housework, for example, the council should assist you in finding this.
  • You can defer selling your home to pay your care fees until after your death.
  • If you’re paying for your own care, you can ask the council to arrange your services for you. It can only charge you as much as someone whose care they are funding.
  • If you’re a carer, you have a legal right to a care assessment from the local council. You can also get support services if you qualify for them.
  • If you find it difficult to communicate or to understand the issues being discussed, the council must provide an advocate to help you when discussing your care. They will represent your interests if you don’t have a friend or relative who can help
  • The council must provide preventative services that could reduce or delay your need for care. For example, intermediate care at home after a hospital stay could help keep you independent for longer.

Ways it may affect you from April 2016:

  • It becomes even more important to get a needs assessment, as the council will then set you up with a care account. This tracks the amount of money spent on your eligible care needs. The word ‘eligible’ is important as it only includes the needs covered by your assessment. So if you decide to hire a cleaner but the needs assessment doesn’t say you need this help, the cost of that won’t be included.
  • There will be a cap on how much you have to spend on your care needs. Anything you or the council spend on your eligible needs will be added up in your care account. Once it reaches £72,000, the council will pay for all your eligible needs. This excludes your daily living costs, which include things like your food and accommodation in a care home.
  • The council can reassess your care needs, even if you pay for your own care. This is because the council works out how much your care should cost to meet your eligible needs, and adds this up in your care account. It needs to check every so often that the amount it thinks you should be spending is still right.
  • New rules about top-up fees in care homes mean you may be able to pay them yourself. Top-up fees may apply if you move into a care home that costs more than the council can pay.
  • If you’re not happy about a decision, you have a new right to complain and appeal it, and for this to be independently investigated.

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                         For more information:
Call Age UK Advice: 0800 169 6565

To all carers

You  can obtain local support at the Ealing Carers – details on a previous blog

https://wordpress.com/post/52087738/1596

When you’re caring for someone it’s easy to overlook your own needs. But looking after your health and making time for yourself can help you feel better and manage better with your caring role.

Your health

Tell your GP you’re a carer, and discuss the impact this is having on your own health. They will be able to offer you advice and support, and you may be entitled to additional health services such as a free annual flu jab if the person you care for has a serious or ongoing health problem.
Although it can be difficult, try to make sure that you eat healthily, stay active and get enough sleep.

Don’t feel like you need to do everything yourself. If you have relatives who live nearby, try to be honest with them if you need a hand or want to share the responsibility.

I’m Emotional health

Don’t overlook your emotional health. Family and friends, carers’ groups , your GP or counsellor, or organisations like Samaritans can all provide you with space to talk about how you’re feeling.

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If you care for someone with dementia, it can be hard to share any feelings of guilt, sadness, confusion or anger with them, leaving you feeling isolated. It’s important to acknowledge your feelings, and remember there’s no right or wrong way to feel.

Silverline

Your social life

It’s a good idea to take up a hobby or activity, such as going to an exercise group or an evening class, if you can. Taking part in an activity you enjoy will give you the opportunity to do something for yourself – it’s important that you have your own interests and make time to pursue them where you can.

Your local library can provide information about social activities, events, education and courses. The University of the Third Age (U3A) can also tell you about courses in your area.

Please refer to a previous blog

https://102theavenue.wordpress.com/2014/07/11/fight-loneliness-and-improve-your-health/

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Are you a carer?

imageDuring my many years as a GP I have been amazed at how some people dedicate their lives to caring for family members or friends. They are a silent army of people who soldier on day after day providing  often 24 hour care with little or no reward except seeing their loved ones well cared for and are to be respected and praised.
What is a carer?
Carers trustA carer is someone of any age who provides unpaid support to family or friends who could not manage without this help. This could be caring for a friend or family member who due to illness, disability, a mental health problem or an addiction cannot cope without their support.
Anyone can become a carer; carers come from all walks of life, all cultures and can be of any age. Many feel they are doing what anyone else would in the same situation; looking after their mother, son, or best friend and just getting on with it.
Carers don’t choose to become carers: it just happens and they have to get on with it; if they did not do it, who would and what would happen to the person they care for?
http://www.carers.org/co-op-charity-year

One of my first experiences of witnessing the unceasing dedicated work of a carer was Gwen who was caring for husband Tom. Tom had been suffering from multiple sclerosis since the age of 42yrs having worked underground as a miner since he was a young boy. He was now in his 60’s and had been bedbound for many years and was totally reliant on his wife to even change position in bed. Gwen would not even contemplate respite care for him and dutifully tended his needs every day and night. Her family were concerned for their mother’s health hence we decided to write to the MS Society asking if they could fund an adjustable bed as an aid for Gwen when lifting Tom to change him.

I recall the day vividly when I was invited along with neighbours and family to see the new bed arrive. Tom was absolutely thrilled because for the first time in many years he could be raised to a sitting position and watch the children playing in the park and to become part of the World outside again. Gwen was pleased to have the mechanical help to change his posture especially as she had been getting tired and weary but now could relax with him and view the world together. Carers requests are often so humble and unless someone makes the request on their behalf they ask for very little.

At last it is being recognised, after a year-long investigation by Carers UK the stark reality faced by those looking after loved ones who are older, disabled or seriously ill: loss of savings, debt and struggling to afford food and heating aswell as the physical and mental sufferings of the carer.
Read how Carers UK are helping carers and their families
http://www.carersuk.org
This website will also provide information for you to find out about your local services.

Ealing Carers’ Centre
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This is a resource and support centre for all unpaid carers, of any age, in the borough. The centre is managed, in partnership with Ealing Council, by Carers Connect, a consortium led by the Ealing Centre for Independent Living and including Ealing Mencap, Dementia Concern Ealing and Crossroads Care West London.

Location
46 South Ealing Road, Ealing. London, W5 4QA
Tel: (020) 8840 1566

Fax: (020) 8840 5688

Email Carers’ Centre: carers@ecil.org
Opening hours: Mon–Fri, 9.30am–4.30pm (except bank holidays and other seasonal breaks)

The centre provides:

  • advice and resource information
  • holistic therapies
  • free exercise classes
  • an internet café
  • a large meeting room

It hosts carers networking groups and works in partnership with statutory and non-statutory agencies to enhance services for carers.

A list events and activities at the centre is provided on the Ealing Carers’ Centre website.

Membership
You don’t have to be a member to use the services available at the Carers’ Centre or the Ealing Centre for Independent Living (ECIL). However, carers can join the organisation by filling in the online ECIL membership application form. Members will receive the regular ECIL mailing of social and campaigning news, as well as the Carers’ Connection newsletter.

Support services
Staff at the centre have information about a variety of different services provided by Ealing Council and local organisations. Appointments can be made at the centre for one-to-one benefits advice or for legal advice on some areas. Emotional support is also available from people who understand carers’ concerns.

The Carers’ Centre does not currently carry out carer’s assessments, which can be arranged by contacting the social services customer contact centre on (020) 8825 8000, or visiting your local social
services reception point.

Respite care for older people

Short breaks for older people are stays in a residential/nursing home to provide respite for the older person or their carer.

The short breaks service for older people provides:

  • short breaks for carers of older people by offering the older person a brief period in a residential/nursing home
  • short breaks for older people whose well being would be enhanced by a brief period in residential/nursing home

A short break can be considered as a stay for one or two days, but is usually offered in blocks for up to two weeks.

Under this planned short breaks service, the maximum breaks that anyone can have is a total of eight weeks over a twelve month period where there are exceptional circumstances. A total of four weeks is the usual limit.

EalingHELP – new group for parents and carers of children with disabilities in Ealing
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A Facebook group has been launched  for parents and carers of children with disabilities in Ealing and West London to share information and experiences. You can join at http://www.facebook.com/groups/ealinghelp

Jointly is an app that makes caring for someone a little easier, less stressful and a lot more organised by making communication and coordination between those who share the care as easy as a text message.
Jointly app
Jointly app
Click on the above text

If you or you know someone who is a young carer
YCNet, at http://www.youngcarers.net, is the only dedicated website and online support service for children and young people under the age of 18, who help to look after someone in their family with an illness, disability, drug/alcohol addiction or mental health problem.

Down's syndrome

 
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Posted by on February 13, 2014 in Training and Advice

 

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CONGRATULATIONS !

imageWell done all those runners who completed the half marathon and the mini marathon yesterday! I recognised at least 3 names amongst those who were amongst the runners. Congratulations on raising money for so many worthy charities. Training for this event has meant a lot of training and if you want to consider next years event and keep fit at the same time you may need to start now! The planning and preparation of the Ealing Half Marathon on race day was supported by Ealing Eagles Running Club image which is a friendly and social running club in Ealing, founded in 2009 for runners and joggers of all standards, from beginners and novices to expert racers, in the Ealing, Perivale, Greenford, Hanwell, Northfields, Brentford & Acton area. If you live, work or are just passing through the Ealing area,you can join one of the Ealing Eagles training sessions. http://www.ealingeagles.com Charities supported It was interesting to learn about those charities, most of which support local causes, that benefitted from runners who raised money by being sponsored. I am afraid I was not aware of several of these charities and felt it was an opportunity to promote their work in our community and beyond. The headline charity of the race supported was:- image Epilepsy Action exists to improve the lives of everyone affected by epilepsy. As well as campaigning to improve epilepsy services and raise awareness of the condition, Epilepsy Action offers assistance to people in a number of ways including a national network of branches, accredited volunteers, regular regional conferences and freephone and email helplines.

*************************** image Ealing Mencap provides a wide range of services and support to people with learning disabilities in west London, as well as their families and carers. http://www.ealingmencap.org.uk *********************** imageC-A-P-E is an established registered charity offering a dynamic and flexible outreach and day service for people who experience severe and enduring mental health difficulties living in the London Borough of Ealing. Cape aims to improve the quality of life of the people who use the service by; * Enabling clients to access meaningful activity. * Facilitate clients to build relationships with others who may be isolated. * Offering support – emotionally, practically and socially. * Helping clients to access a range of health and social care provisions. * Helping clients make informed choices about their lives. * Promoting the principles of recovery. Visit their website for more information http://www.c-a-p-e.co.uk *********************** image Shooting Star CHASE is your local children’s hospice service, a charity caring for local families with a child or teenager with a life-limiting condition. We currently help over 600 families living in western London, Surrey and West Sussex. Our aim is to make every day count for these families. We are here for every step of their journey, sharing the good times and helping them through the tough times with practical, nursing and emotional support. ********************** image We work through local churches to unlock people’s potential, helping them to discover that the answer to poverty is within themselves. When disasters strike, we respond quickly. We won’t stop until poverty stops. At Tearfund, what drives us is a belief that the local church is a powerful force for transformation in communities living in every kind of poverty. Inspired by the example and teaching of Jesus, we recognise that people have deeply interconnected material and spiritual needs, and we seek to meet those needs by working through our local church partners. Churches are at the heart of their communities – full of dedicated, resourceful people who want to make a long-term difference. We work particularly in Africa, Asia and South America – and also across Eastern Europe and the UK. Right now, we’re focussing on some of the biggest challenges facing the world today. Find out more about what we do and where on our website.http://www.tearfund.org ************************ image Imperial College Healthcare Charity is an independent charity that raises and manages charitable funds for all five hospitals within Imperial College Healthcare NHS Trust: Charing Cross, Hammersmith, Queen Charlotte’s & Chelsea, St Mary’s and Western Eye hospitals. We work with Imperial College Healthcare NHS Trust to pursue three key objectives: Great Science – enabling clinical research and advances in healthcare. By supporting staff to deliver advancements in medical science, we can make improvements to the treatment patients receive. Clinical advancements can help reduce the time patients spend in hospital, reduce their discomfort and make improvements to their rehabilitation and recovery. Excellent patient care – making a measureable difference to the patient experience and delivery of care. Excellent staff are key to ensuring excellent patient care. We therefore provide grants to staff for training and personal development. We also support the Trust to recognise excellent staff through a range of recognition awards. The use of art has long been recognised as an effective way to improve the healing environment. We manage an art collection of more than 1,600 pieces that are displayed across all five Trust sites. A healthier community – supporting projects that tackle health inequalities in the communities served by the Trust There are huge disparities in the health of the communities where the Trust’s hospitals are based. By funding local community organisations and initiatives, the Charity is able to support the Trust, in accessing some of the hardest to reach communities, where health problems prevail. ************************ image In 2010 22 year-old Holly Bantleman set off on a soul-searching round-the-world trip, hoping to have that ‘life changing’ experience and during this trip she visited Kenya. Raise the Roof Kenya’ began after she visited a village on a dump site called ‘London’ in the town of Nakuru. The area had sprung up after the 2007/2009 electoral violence in which so many people were displaced. Over 250 people, many children, set up camp on the landfill and found themselves with no means of escape, relying on the rubbish truck for their food, with children playing in rags, barefoot and literally starving. Initially the the idea was to raise the money to buy tin roofing for the people living on the landfill without food or shelter and to eventually provide a long term solution for their plight. With that mission accomplished after raising money through UK donations, several more visits to Kenya, and many more eye opening experiences, Holly decided that RTRK would become a long term project. From school fees and medical bills, to housing and small businesses, RTRK have managed to support children and families in destitute situations. Now spending a third of her year in Kenya, Holly has noticed a lack of opportunity for the bigger teenage kids, (she was one herself not so long ago!) so has found another directions in which to take RTRK – the ‘Think Big’ Project is the Barut Development Centre build. The idea is for us to provide the community (the poorest in the area) with a sports ground, community centre and vocational school so people can gain education and training to go on and live sustainably in the future. ************************** image St Mungo’s opens doors for homeless people. Mainly based in London and the South, we provide over 100 accommodation and support projects day in, day out. We run emergency homeless services – including street outreach teams, and accommodation for rough sleepers and hostels. We support homeless people in their recovery – opening the door to safe housing, drug and alcohol support and physical and mental health care. We provide more help for homeless people in gaining life skills than any other charity – from job training to independent living skills in our ‘semi-independent’ houses. Preventing homelessness is very important to us. Our ‘complex needs’ housing provides safe and supportive homes for nearly 400 vulnerable people. Our community support teams work with thousands of people at risk – including former rough sleepers. By opening our doors, and by opening the doors to services within St Mungo’s and in the broader community, we are able to help thousands of homeless people change their lives for good every year. ************************* image http://www.samaritans.org/branches/samaritans-ealing-branch TALKING GOT ME THROUGH Talk to us any time you like, in your own way, and off the record – about whatever’s getting to you. You don’t have to be suicidal. WELCOME TO THE SAMARITANS EALING BRANCH If something’s troubling you, get in touch: Telephone our branch: 020 8560 2345 Email Samaritans: jo@samaritans.org Visit our branch: Samaritans London 26 Junction Road Ealing London W5 4XL Usual hours open to receive callers at the door: Phone for details Facilities for visitors with disabilities: Phone for details ************************ image ECIL is a membership organisation representing and supporting disabled people and carers, of all types and of any age, who live and work in the borough of Ealing and surrounding boroughs. We are proud to be part of the Independent Living movement and are one of a growing number of Centres for Independent Living (CILs) around the country. The government strategy paper Improving the Life Chances of Disabled People published 2005 recommends that there should be a CIL in every local authority area. ECIL was formed as an independent organisation in 2002. We gained our charitable status in that year. We are now funded by Ealing Council and the Ealing Primary Care Trust. ************************ image The Gabrielle Gray Foundation is a charity founded in the memory of my sister Gabrielle Emilie Gray Giam (Gaby) who passed away on the 16th of August 2012 at the age of 31. The Gabrielle Gray Foundation was inspired by the compassion that Gaby showed towards others throughout the 31 years of her life. Some of her last advice to us was to not be bitter, to be grateful for everything and no matter how bad things seem they can always be worse. These wise words remind us of how fortunate most of us are. The Gabrielle Gray Foundation will be helping young vulnerable adults between the ages of 18-24 in West London. Help us to help others who are less fortunate and continue her legacy. If anyone reading this may have benefitted from one of these charities or who ran the half marathon for another worthy cause it would be great to publish your story on this site, which aims to talk about health and related issues especially of local interest.

 
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Posted by on September 30, 2013 in Training and Advice

 

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EALING HALF MARATHON – 29th September 2013

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Come and cheer on the ECIL All Stars, who are running to raise funds for disabled people and carers in Ealing. The Half Marathon starts in in Lammas Park from 9.15am. If you’d like to sponsor us, contact Wendy on 020 8840 1566 or wendy.starkie@ecil.org.

Ealing Centre for Independent Living. ECIL is an organisation of disabled people working to eliminate the barriers preventing disabled people from living full and independent lives.
Come to ECIL for everything you want to know about Disability, but were too afraid to ask. We offer advice, information and we can help you get what you need to live an independent life. It’s FREE to join, so why not become a member.
http://www.ecil.org/

The 2nd Ealing Half Marathon will take place on Sunday 29th September 2013 in Ealing, West London
One of only three fully road closed half marathon events in London the race will start and finish in Lammas Park, one of West London’s most picturesque parks and take in parts of Central Ealing, Montpelier, Pitshanger, West Ealing, Hanwell and St Stephen’s before returning to Lammas Park.
http://www.ealinghalfmarathon.com/
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Ealing Mini Mile
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Ealing Half Marathon are pleased to announce the Ealing Mini Mile for 2013. It’s our new race open to children aged 6 – 11 years of age with the route taking place in and around Lammas Park.

The children’s race is run over a course of approximately 1 mile and starts at 9:30am (after the runners have left Lammas Park at the start of the Half Marathon). Entry is £5 with prizes up for grabs for different age categories plus a medal and t-shirt for all finishers.

The race is well supported and will become a popular feature of the day with many children from local schools competing as will the offspring of the Ealing Half Marathon runners and junior members of local athletics clubs.

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Free workshops for carers return!

Supporting carers is something that we as a practise, part of a network and the ECCG want to strongly support. Many people of all ages act as carers without payment, unconditionally giving all-round help and support to a friend, neighbour, relative or another person.

Many people who are caring for someone do not necessarily see themselves as a ‘carer’. Rather they are mothers, fathers, daughters, sons, partners, husbands, wives or neighbours. However, being identified as a carer by the council can help you get the right support you need to look after the person whom you care.
The Carers’ Centre is a resource and support centre for all unpaid carers, of any age, in the borough. The centre is managed, in partnership with Ealing Council, by Carers Connect, a consortium led by the Ealing Centre for Independent Living and including Ealing Mencap, Dementia Concern Ealing and Crossroads Care West London.
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Following the success of the pilot course for carers earlier this year, Ealing Carers’ Centre is once again running a series of FREE workshops at the Carers’ Centre in November.

The aim of the course is to improve the skills and confidence of people who are caring for a family member or friend at home, and to help them find ways of making more time for themselves.  It is NOT designed to train people to become paid care workers. Twelve places are available and the aim is for participants to attend all the workshops. The workshops are open to all carers who live in Ealing and/or care for someone who lives in Ealing.  The closing date for reserving a place is 7th October.

For more information, please contact Cecilia Coleshawat cecilia.coleshaw@ecil.org or on 020 8840 1566.

If anyone reading this blog has taken part in the half marathon or wants to make a comment about any of the organisations for which money has been raised please make a comment or email
admin.theavenue@nhs.net

 

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